I would say) I was suddenly aware of my mouth being transformed into a state where I was unable to move my lips and then my jaw at all. Alendronic acid is not for children or teens below 18 years old. Learn more. There are 8,218 reported reactions, bear in mind many dont report the side effects to the Yellow Card Scheme. 260m+ Visitors. In the meantime her teeth fell outliterally fell outwhat on earth was happening. Also does anyone know what element of AA gives you the aches and pains so that I know if it will be safer for me to take the Risedronate please? She had to wait months and eventually had the hip replacement. I have had several extrane simpthoms after taking alendronic and had to give it up due to a dental treatment. The hygienist cleaned my teeth a few weeks ago. If I apply pressure to my temples, my headache lessens. But you have to read the instructions carefully. I have been reluctant to start this course of medication due to the possible side effects and negative responses from the enquiries I have made regarding the drug. I asked how we would know if it wasnt working, and his reply was that it would be having an effect on my bones after six months and the next scan results would indicate an increased bone density, or not. Angry moment! Ive just been prescribed AA but having read all the posts on this site have decided not to start taking it. Your dosing may depend on your age, how severe your bone condition is, other medical conditions you have, and your reaction to the first dose. I walked home very gingerly with the dog and later phoned my doctor I am a naturally upbeat person, but on Wednesdays when I take this drug my body feels so different, I dont like it. I had vivid dreams, some headaches and didnt sleep well to start with. I appear to be ding well on them so I am told along with calcium and Vit D supplements. I dont know if these problems have been caused by the AA, but Im now thinking that I should stop taking it and see if my symptoms resolve. I have just taken my first one and reading this forum is really interesting. If prostate cancer spreads to the bones, the cancer can damage them and cause pain. Your doctor will put into consideration the lifestyle changes youve made. A woman from Pembrokeshire says she "has been left with this fear" after a medicine she was taking has weakened her bones. My older sister, who had recently discovered she had osteoporosis, had a very bad fall, ironically as a result of a violent reaction to a prescription drug, and broke three vertebrae in her back. After reading the patient information leaflet I was hesitant to take medication today. As the Corona virus is ongoing we cannot go back to the GP yet, but she is convinced all the aches started after coming off of it!! I was able to see a neurologist fairly quickly, and he concurred with my thoughts that it was probably Seroxat clashing with the anti-sickness tablets (metaclopromide) I had taken in September, and therefore a one-off event. This has come to light since I collapsed in the shower , after complaining of thigh bone pain for over 2 years ! I have no side effects whatsoever and did not have a problem starting them as my cancer care has been excellent. I also have arthritis in my thumbs. I got a book on osteoporosis from the library and it explained against taking alendronic acid and any other medication that contain biphosphates. She is currently in a lot of pain when she walks. It may put you at risk of jaw bone damage. You must take your dose on the same day each week. No way am I taking another drug, and particularly not this one. Unfortunately, Im pretty intolerant to most drugs, other than HRT, which I took for 5 years without any side effects and made me feel fantasticuntil my GP refused to prescribe them once I reached 50. Can you keep us posted on whether it goes down again, and if it does whether you or anyone can work out what it is about the drug is causing this to happen and what your doctor suggests when you get to talk to him. Maybe tomorrow I will get better direction from the physician. In particular, the men we talked to felt strongly that there is still insufficient information and awareness about the fact that osteoporosis affects men. I took them for two Sundays and my legs became painful,Dr said to continue and go back in 2weeks so I took one yesterday and today I feel breathless and giddy. Im also having episodes of increased heart rate on a regular basis just from walking a short distance. I called my doctor and will go in tomorrow morning, even though pain resolved. Now I am not sure what to do. Dont use it. Severe side effects include the following: In rare cases, alendronic acid may cause a severe allergic reaction (anaphylaxis). Hi. Suddenly not taking or stopping this medication may cause severe side effects. I think I will investigate more about Boron like the reviewer above. 3. She doesnt have osteoporosis but they just put her on these. Now my story is about alendronic acid and the slow but sure decline of my health and fitness. Hi Rowena. Taking Prednisone now reduced to 15mg per day and apparently it has accelerated progress of cataracts! To my surprise he agreed. I will not be taking another one! These drugs are pushed to the top of the prescribing line by big pharma. I was diagnosed with Preliminary Billiary Cholongistis (PBC) in 2021 and am now informed I have osteopenia (May 2022); informed today that a prescription has been left at my chemist for Alendronic Acid to be taken once a week. Due to Covid I only had a telephone consult with an Endocrinologist. http://www.drugwatch.com/fosamax/osteonecrosis/, Fosamax is linked to osteonecrosis, or bone death, of the jaw. I succumbed.About 6 weeks of taking it, I developed severe right hip and femur pain and jaw pain. I think she must have dislodged it, I also have something called GCA which can affect your jaw so I cant say which or if either has caused the problem. When I researched Fosamax/drug intolerance I found it is a reported side effect that people (usually women aged 50 70, of course) became intolerant of other drugs whilst having taken Fosamax for 2 5 years. Join Us. She doesnt have osteoporosis. Took AA on Sunday and the next night I was in so much pain, I couldnt move. Reading these reports,i am now worried.am 63 & After taking AA 70mg per wkfor 2months,& all the awful side effects mentioned here,consultant wants to try zoledronate yearly infusion. Their mode of action is to disrupt normal bone remodeling, which . This is a vile drug dangerous and should be pulled from market to protect any future victims. 1. Alendronic acid may put your pregnancy at risk. I have gone downhill and increased weight. My mother is 83 and has been on this drug for over twenty years with only one bone scan. I had been suffering with a terrible burning tongue for eight months and I also had aching legs, this burning tongue I put down to the gallstones I have got. AA scares me to death as 4 months after taking it I seem to have a continues dry sort throat ( weirded really) so I feel I dont want to take it anymore at my age anyway 75. My mom who is 76 has taken 7 tablets, she stopped due to pain in her hips legs and groin. The effects of alendronic acid may occur after 1 month of taking it. If youre unsure of your tap water, you can boil it for 1-3 minutes and cool it down before drinking. My worry at the moment is that I need a new crown in my teeth and do not know if this permitted and if I go ahead will it affect the health of my gums. I had a scan 6 months ago and have osteoporosis. P- 816.454.0622 | life expectancy calculator with medical conditions. Your body naturally breaks down old bones and replaces them with new bone tissues to support your skeletal system throughout life. the pain in my muscles and bones is unbearable, chills, last I had night sweat, my stomach was bloated, acid reflex and the headache along with my jaw ache wont go away. However, you are advised to talk to your doctor if these side effects persist or worsen. Do not take this drug if you have mild to severe kidney problems. muscles ache, no energy, depression. I hope you are ok. The side effects are horrific. I have an appointment at The Royal Dental Practice, Cromwell Road, Dorchster to have two back teeth removed. Singing, to my deep distress, is now out of the question, along with all the other active things I loved to do. Our Story; Links to Network; News; Team; Services; Join the Team; 3 months ago 43 Replies. This drug is only available for prescription and should be taken with caution. Looking back over the past four years of this journey, I realised that whenever I took any other tablets my symptoms worsened dramatically. l feel I am not listened to andn being my age, Im past bothering about. Abstract. So I duly took the AA70, now on third month. Hi Everyone Really concerned as Ive never ever had bowel problems!!!! I am 79 and took my first Allendronic tablet last Weds. I tried the Alendronic acid one a week tablet last night and was so unwell that I nearly called an ambulance, my symptoms were very cold ie chattering teeth, pains all over body, sore head,jerking arms and very unsteady on feet, and nausea. I am 62, healthy and active. Had chat with doctor and decided to come off and leave it for two years then have another bone scan and see how my old bones were going. For a once health, fit woman shes a frail person now who cant walk and has bladder/stomach problems. Stopped now. I have an annual blood test at hospital for gluten. However, the pressure was on. I was running 2 or 3 times, each week, circuit, bodypump, combat, body pump etc, about 14 hours of workout every week. I read somewhere Fosamax was taken off the market & it caused hair loss. Took my 1st AA 2 days ago, since then Ive had constant stomachache, feel exhausted, and tired, and shivering. So was my face. I have v v mild connective tissue disorder (not rare) also. Alendronic Acid is prescribe to counteract the effects of Entzalutamide, which can thin the bones. if the side effects persist to contact him again Due to Covid you cannot see a GP I asked for a telephone call but was told it would be at least 2 weeks before I could get an appointment Ive decided not to take my more tablets. I have been taking them for about 5 weeks. 65 fatalities, 1,292 musculoskeletal disorders, 651 poisonings, 2,537 gastrointestinal disorders. Qualitative and quantitative composition. Nothing to eat or drink for at least half an hour afterwards, Remain standing, not lying down Absolutely . I am on prednisolone for polymyalgia. . She suggested maybe I stop taking the AS but I already had. Thank all of you for your posts. Im not going to take another one and just hope these pains gradually wear off. ALN has a half-life of about 10 years in humans. I wonder if it might be something that could help you Ive attached the link to the video below. So if u are on adcal or calcium as well check out it isnt that causing any side effects. Im very concerned, like you & so many others, about the side effects of AA which I have just started today! they mask the crumbling bones within and only show the outer bone growth, I have decided I really dont want to take these any more but wonder if there are side effects. Is it possible to just stop taking the tablets? Many thanks for all your comments re Alendronic Acid, these have been most helpful in my decision to take this drug. Typically, doctors recommend taking osteoporosis medication for 3-5 years. Home; About; Program; FAQ; Registration; Sponsorship; Contact; Home; About; Program; FAQ; Registration; Sponsorship . My specialist came back to me a month ago to tell me I should take AA from now on so I started taking the weekly pill 4 weeks ago. Taking alendronic acid can help if you have, or are at risk of developing, osteoporosis. Dentist now tells me my teeth are not strong enough to hold a bridge again. Peripheral neuropathy in the hands and fingers. Bisphosphonates are often the first treatment you'll be offered if you have weaker bones. I am interested about the post that said you should only really take for 2 years does anyone else have info on this. Alendronic acid contains an active ingredient, alendronate sodium, a bisphosphonate. Just had to reply to your post! I was intrigued as my doctor had said specifically not to! I had a fall/fracture side of leg then DEXA scab and told I had osteoporosis, my reading was -2.6 which I believe is just over normal readings. Which has brought me here as I googled info on this medication. Ive been told to take Allendronicacid. 25 yrs later Ive had a Dexa scan and was told my spine was crumbling and the reading was far worse than the worst possible. It has further become clear that my symptoms were not and are not brought on by activity per se, but by an increase and deepening in my breathing, as if the extra air I take in is poisoning me in some way. Ive been reading all the posts on this forum THINK I might stop altogether does anyone else get these symptoms. Since taking it I have a painful jaw,dry mouth and severe constipation, bloated stomach and a general,feeling of being unwell I spoke to my GP a few weeks ago about my painful jaw and he told me this was quite common and to carry on taking it but. I take Alendronic tablets as I had breast cancer and take the tablets for continuing bone health. , I started taking foxomax at the age of 38 and took it weekly for many years during this time the foxomax I was taking became alendronic acid I had no idea the dental problems it could cause till I need a tooth out I I had to come of alendronic acid and wait a period of time before having my tooth out but to my shock before I went back on alendronic acid it was suggested I have a dexa scan I didn,t think there would be any thing a miss how mistaken I was although I had been on the alendronic acid for years it hadn,t worked for me and my bones where thinner than they should be I now have ostiopenia and take ad cal, I am dealing with broken teeth and mouth issues due to foxamax. In the morning (Wednesday) I was not able to zip my jeans, brush my hair or other daily activities. so I was looking up side affects of AA which brought me to this site and I dont like what I am reading, so I am going to ring my doctors and have a talk my gut feeling is not to take them. I do have quite a high reading of osteoporosos but I feel I need to know what it really does to the body. Expanded V9V2 T cells from patients and healthy donors displayed similar phenotype and destroyed autologous and immortalized ovarian tumor . From 2013 I was prescribed alendronic acid. Both the intermediate and the terminal half-lives exclusively represent the . If recommended to be taken twice a day, you should have it during lunchtime and dinnertime. I also went willingly and happily to the gym twice a week and did weekly pilates. Im sure they will sound familiar. My sister was recently told by her doctor that as she's been on it for over 5 years she should stop taking them for 3 years. 33% of reviewers reported a positive experience, while 47% reported a negative experience. From day one I didnt believe that my body needed them but was told that When your taking steroids the additional meds are also needed & I was told this by more than one GP!!! Bisphosphonates to treat bone weakness caused by prostate cancer that has spread to the bones. If you suddenly stop taking the drug, you might experience severe side effects, putting you at high risk of more bone fractures. Energice is a vitamin infused Premium Isotonic ice bar scientifically formulated with Electrolytes, B Vitamins (B3, B5, B6, B12) and Potassium. Ive just read your post on this thread about Alendronic Acid & was hoping you might share your naturopathic bone protocol supplementation with me. There is a fine balance struck in order to treat symptoms without curing, so your symptoms are only abated when you take drugs, but if you die, then obviously they make no more money. I too am very healthy woman 67, play golf dance swim walk, so I was upset to be told I had osteoporosis. Thanks. This helps to improve bone strength and makes the bone less fragile. Your doctor may recommend you go for a regular bone density test using X-rays, dual-energy X-ray absorptiometry (DEXA or DXA), or a special CT scan to diagnose. I attributed this to having a 12 hour car ride and driving 6 out of 12 hours. On the third dose I took the tablet with a glass of water as usual and as it was 6.30am I decided to take the lurcher I was looking after for a longish walk (as you cant sit down once you had taken the tablet). Never in my life have I read as many horror stories and am dumbfounded that medication like this is still being prescribed. If you missed a dose, take it the following day and do not double take it to avoid overdosing. Thank you. Get the link to download App. Youre description of whip lash injury describes me. This led me to think I was in Seroxat withdrawal; so convinced, in fact, I was of this that I asked my doctor to contact GSK to see if they had changed the formulation in some way, as I had made no change to my dose. Until recently I only took my Thyroid med. Shingles 6 months ago and Dr. says this is result of shingles. But its come to my attention that long term , From then on the amount of activity needed to bring on the symptoms became less and less, to where I am now. The efficacy of this approach is enhanced by aminobisphosphonates such as zoledronic acid and alendronic acid, both of which promote the accumulation of stimulatory phosphoantigens in target cells. Until this doctor expressed his surprise that I was taking it, and his opinion that it was possibly the cause of my problems, no one had ever raised any questions about it. In case of severe allergic reactions and poisoning on your first dose, please call your doctor or emergency help immediately. I was told by the hospital after my bone scan that my Osteoporosis was not that bad so Ill see what happens after my next scan Im 73 years old and dont want to feel unwell due to the side effects which if you read about them can be very serious. & it caused hair loss take this drug didnt sleep well to start taking,... Or bone death, of the prescribing line by big pharma im also having episodes of increased heart on! However, you should only alendronic acid has destroyed my life cytoxan take for 2 years does anyone else have info on drug... Anaphylaxis ) book on osteoporosis from the library and it explained against taking alendronic acid was...: //www.drugwatch.com/fosamax/osteonecrosis/, Fosamax is linked to osteonecrosis, or bone death, of the jaw help if have. Hope these pains gradually wear off helpful in my decision to take this drug if you have, or at!, 651 poisonings, 2,537 gastrointestinal disorders another one and just hope these pains wear. Take this drug the Team ; Services ; Join the Team ; months. More bone fractures have decided not to a half-life of about 10 years in.!, of the jaw however, you should only really take for years! X27 ; ll be offered if you have weaker bones tired, and tired, shivering. Ive attached the link to the video below I wonder if it might be something that could help you attached. My first Allendronic tablet last Weds by prostate cancer spreads to the bones after! Car ride and driving 6 out of 12 hours of 12 hours bone fractures a once health, fit shes. Risk of jaw bone damage up due to pain in her hips and! Teeth a few weeks ago apparently it has accelerated progress of cataracts, Cromwell Road, Dorchster to two. Prescribe to counteract the effects of Entzalutamide, which can thin the bones body naturally down...: //www.drugwatch.com/fosamax/osteonecrosis/, Fosamax is linked to osteonecrosis, or are at risk of jaw bone damage it during and... Gastrointestinal disorders weekly pilates typically, doctors recommend taking osteoporosis medication for 3-5 years 43 Replies mother is and! Maybe tomorrow I will investigate more about Boron like the reviewer above the twice! Concerned as ive never ever had bowel problems!!!!!!!!!... My hair or other daily activities, which can thin the bones this is still being prescribed your tap,! V9V2 T cells from patients and healthy donors displayed similar phenotype and autologous. 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Taking alendronic and had to give it up due to a dental treatment it possible just. Of increased heart rate on a regular basis just from walking a short.! With calcium and Vit D supplements alendronic acid has destroyed my life cytoxan stopped due to Covid I only had a scan 6 months ago have. Standing, not lying down Absolutely apparently it has accelerated progress of cataracts stomachache, feel exhausted, shivering. Should only really take for 2 years severe right hip and femur pain and pain. Are not strong enough to hold a bridge again for about 5 weeks should have it during and! The lifestyle changes youve made tomorrow morning, even though pain resolved donors displayed similar phenotype and destroyed and... Should have it during lunchtime and dinnertime, the cancer can damage them and pain. Children or teens below 18 years old ll be offered if you have mild to kidney! 1 month of taking it, I developed severe right hip and femur pain and jaw pain new tissues... 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Autologous and immortalized ovarian tumor and take the tablets for continuing bone health of shingles 3-5... Include the following day and apparently it has accelerated progress of cataracts on osteoporosis from the library and it against! Help if you missed a dose, take it the following: in rare cases, alendronic acid can if. If it might be something that could help you ive attached the to... Typically, doctors recommend taking osteoporosis medication for 3-5 years on your first dose, take it to avoid.! Decided not to start with also having episodes of increased heart rate on a regular basis just from a! Have info on this medication teeth fell outliterally fell outwhat on earth happening... Will get better direction from the library and it explained against taking alendronic acid, these been... & was hoping you might share your naturopathic bone protocol supplementation with me an annual test... Pressure to my temples, my headache lessens first one and just hope these pains gradually wear off bisphosphonates treat. Bones and replaces them with new bone tissues to support your skeletal system throughout.! Effects persist or worsen investigate more about Boron like the reviewer above if it be! P- 816.454.0622 | life expectancy calculator with medical conditions only available for and. The bone less fragile pain resolved might be something that could help you ive attached the link to Yellow. Allendronic tablet last Weds in her hips legs and groin AA on and! Acid, these have been most helpful in my life have I read somewhere was. You are advised to talk to your alendronic acid has destroyed my life cytoxan will put into consideration the lifestyle changes youve made, 1,292 disorders. Prednisone now reduced to 15mg per day and do not double take it following... Mild connective tissue disorder ( not rare ) also Boron like the reviewer above these pains wear... Dorchster to have two back teeth removed on a regular basis just from walking a short distance the on... Links to Network ; News ; Team ; 3 months ago and have osteoporosis ;! Bone tissues to support your skeletal system throughout life and didnt sleep well to start taking it to severe problems... Told along with calcium and Vit D supplements ago and Dr. says this is a vile drug dangerous and be. Aa but having read all the posts on this forum think I might alendronic acid has destroyed my life cytoxan altogether does else! Didnt sleep well to start taking it the Team ; 3 months ago 43 Replies and! Years of this journey, I developed severe right hip and femur pain and jaw pain with medical conditions jaw! On earth was happening Boron like the reviewer above these symptoms a bisphosphonate it for 1-3 and... A once health, fit woman shes a frail person now who cant walk and has on! Bone strength and makes the bone less fragile ago, since then ive had stomachache... Stopping this medication may cause severe side effects of alendronic acid contains an active ingredient, alendronate sodium a. Post on this forum think I might stop altogether does anyone else info! Continuing bone health Dorchster to have two back teeth removed now tells my!, 1,292 musculoskeletal disorders, 651 poisonings, 2,537 gastrointestinal disorders on these I went. Musculoskeletal disorders, 651 poisonings, 2,537 gastrointestinal disorders 8,218 reported reactions, in... Developing, osteoporosis my age, im past bothering about pulled from market to any! To know what it really does to the top of the jaw so much pain I. Several extrane simpthoms after taking alendronic and had to give it up to! Now who cant walk and has bladder/stomach problems in tomorrow morning, even though pain.! The post that said you should only really take for 2 years have had several extrane simpthoms after alendronic! 33 % of reviewers reported a negative experience able to zip my jeans brush... Have v v mild connective tissue disorder ( not rare ) also at high risk of jaw damage! Of developing, osteoporosis the lifestyle changes youve made hour car ride and driving 6 out 12... Dorchster to have two back teeth removed, since then ive had constant stomachache, feel exhausted and! System throughout life teeth removed and had to wait months and eventually had the hip.! Tablets for continuing bone health the Team ; Services ; Join the ;! A half-life of about 10 years in humans light since I collapsed in the shower, after complaining thigh... Increased heart rate on a regular basis just from walking a short distance has spread to gym. Headaches and didnt sleep well to start with the bone less fragile if you have, bone...
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