You won't meet your benchmarks on time, or ever. Meets: First Monday of the Month, 5-6 p.m. PDT (GMT-7). Explore. Read honest and unbiased product reviews from our users. " Care Work: Dreaming Disability Justice is a collection profoundly necessary at this moment the essays share a fundamental hypothesis: to achieve social justice, ableism must be destroyed. We host events in NYC and broadcast them here! In their new, long-awaited collection of essays, Lambda Literary Award-winning writer and longtime disability justice activist and performance artist Leah Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centres the lives and leadership of sick . Long marches and conferences continuously asking people to move around is not "justice" -- that is ableism. Register to receive personalised research and resources by email. I just finished this book and still try to gather all my thoughts. Care webs : experimenting in creating collective access -- Crip emotional intelligence -- Making space accessible is an act of love for our communities -- Toronto crip city : a not-so-brief, incomplete personal history of some moments in time, 1997-2015 -- Sick and crazy healer : a not-so-brief personal history of the healing justice movement -- Crip sex movements and the lust of recognition . Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community, and a tool kit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. 17. Without accessible performance spaces, disabled artists are discouraged from sharing their work with the public, which impedes the creation of community. Loree Erickson, the fourth Ethel Louise Armstrong (ELA) Foundation postdoctoral fellowship recipient in the School of Disability Studies, is focused on several areas of research, including collective care initiatives and cultures of undesirability. Photo: Alia Youssef. ALICE: Hey, Leah. So much packed into this book! Obtain permissions instantly via Rightslink by clicking on the button below: If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. First, highlighting the need to develop a fair-trade emotional labour economy based on reciprocal methods of asking for and receiving (which can be difficult! Leah Lakshmi Piepzna-Samarasinha, Care Work: Dreaming Disability Justice 7 likes Like "I realize how much I have wanted this and not gotten it [good love], realize how much it is branded in my heart that, to be happy, alone, and childless is a fucking gift that most women get brainwashed into relinquishing." And what our leadership looks like may include long sick or crazy leaves, being nuts in public, or needing to empty an ostomy bag and being on Vicodin at work. "Leah Piepzna-Samarasinha is a poet and essayist whose most recent book, the memoir Dirty River, was a finalist for a Lambda Literary Award and the Publishing Triangle's Judy Grahn Award for Lesbian Nonfiction. Aadir a favoritos In Section II, Piepzna-Samarasinha thoroughly explores two central, intersecting themes in Disability Justice: community and accessibility. I was learning as my friends were, and people I didn't know around the country, that we had to be our own advocates, that we needed to fight back people's view that if you had a disability, you needed to be cured, that equality was not part of the equation. Significantly, Piepzna-Samarasinha reminds us that everyone needs and deserves care regardless of how likeable or networked we are (132). See below for more information. Please note, throughout theinterview, the term DJ refers to disability justice.Are you ready? The essays in Care Work are written in plain language, and many end with practical bulleted lists that provide the reader with concrete tools for enacting Disability Justice in everyday lives. We are advertising this event, but we are not hosting it. Care Workis a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community, and a tool kit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. That's the problem. Disability justice, or DJ, is an anti-capitalist framework that recognizes the interlocking oppressions disabled people face, on the basis of race, sexuality, gender and class. Social Sciences. Like the title suggests, the book is a dream of a truly accessible and inclusive future for (everyone, but especially) sick and disabled Queer, Trans, Black, Indigenous, People of Colour (QTBIPOC). Click to enlarge . Each person is full of history and life experience. Those are exactly the skills that most social justice organizing has historically lacked, thriving instead on burnout . The artist/facilitator is present to elicit these dreams and to reflect back the open presence of the community. As someone who hopes to book tour in the future with a disabled co-author, this gave me a lot of food for thought about committing to booking only wheelchair accessible venues and other ways I might plan my own events to be more open to all, from hiring sign interpreters to having fragrance-free zones. Sick, disabled, Mad, Deaf, and neurodivergent peoples care and treatment varied according to our race, class, gender, and location, but for the most part, at best, we were able to evade capture and find ways of caring for ourselves or being cared for by our families, nations, or communitiesfrom our Black and brown communities to disabled communities., For years awaiting this apocalypse, I have worried that as sick and disabled people, we will be the ones abandoned when our cities flood. Leah Lakshmi Piepzna-Samarasinha (Author), Publisher: Arsenal Pulp Press Format: Book Binding: pb Pages: 262 Released: October 30, 2018 ISBN-13: 9781551527383. hbbd```b``V+@$drfwu-``,fH+ 2#djWR@?9&Kn```?S+ LKc endstream endobj startxref 0 %%EOF 207 0 obj <>stream Everyone should read this! There is a fight to stay relevant and reach people with your art because if people know your work, youll get work, and your work might reach folks. Aadir a mi cesta. Leah Lakshmi Piepzna-Samarasinha's Care Work: Dreaming Disability Justice is an essential text for anyone engaged in disability community, activism, arts, and scholarship. Pinterest. For many sick and disabled Black, Indigenous, and brown people under transatlantic enslavement, colonial invasion, and forced labor, there was no such thing as state-funded care. She also spotlights care webs from the past that may not have been viewed as disabled care like the STAR House started by Marsha P. Johnson and Sylvia Rivera. It is slow. Arsenal Pulp Press. "Emergency-response care webs [happen] when someone able-bodied becomes temporarily or permanently disabled, and their able-bodied network of friends springs into action" (p. 52). But I am dreaming the biggest disabled dream of my lifedreaming not just of a revolutionary movement in which we are not abandoned but of a movement in which we lead the way. Personal narratives and accounts of organizing are voiced from Black and brown and queer disabled people, radically reimagining the ways our society is structured, uplifting visions and models for care . She acknowledges that while she is not an academically trained disability scholar, the goal with her writing is to provide access to information in a way that scholarly essays may not (p. 37). An Ongoing, Virtual Care Web: Sick and Disabled Queers. Edie thinks she has her disability under control until she meets her match with a French 102 course and a professor unwilling to help her out. Picture 1 of 1. Other factors may influence not wanting a caregiver like queerphobia, transphobia, or fatphobia from someone who is meant to be giving care. Call 911 [p. 174]), Piepzna-Samarasinha digs deep and lays bare the complexities of death, loss, grief, and memorialization in activist communities especially when those lost are movement leaders. Find helpful customer reviews and review ratings for Care Work: Dreaming Disability Justice at Amazon.com. Care work: Dreaming disability justice. As opposed to terms like compliance, regulation, standards, or legislation, Care Work invites the reader to long for and imagine what a liberatory future could look and feel like. Ericksons intersectional identities as white, extroverted, and neurotypical aid her in this care model. All rights reserved. 5 Howick Place | London | SW1P 1WG. Sometimes surviving abuse isn't terrible. ), offering, compensating, and setting boundaries around emotional care with ones friends and acquaintances. But then nothing else changes: all their organizing is still run the exact same inaccessible way, with the ten-mile-long marches, workshops that urge people to get out of your seats and move! and lack of inclusion of any disabled issues or organizing strategies. Care Workis a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community, and a tool kit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. Published: 12/24/2019 Genre: Social Science - Handicapped. With such a focus, this book and the movement it describes are critically important for readers and disabled people who have faced such exclusion in community, organizing, and disability studies, as well as those well included in traditional movement/academic spaces who have much work to do to build spaces where no one is left behind (back cover). Copyright 2001-2023 OCLC. Grateful for it. We are currently working on the following: Most of our meetings are open to respectful guests. Disability justice must include the feelings, thoughts, and voices of disabled people. Because it does. I am grateful that the author wrote this book and that I had the opportunity to read it. Unsurprisingly and unfortunately, these ableist ideas often carry over into healing spaces that call themselves alternative or liberatory. The healing may be acupuncture and herbs, not pills and surgery, but assumptions in both places abound that disabled and sick folks are sad people longing to be normal, that cure is always the goal, and that disabled people are objects who have no knowledge of our bodies. In contrast to disability rights movements, which have focused on gaining inclusion in the nation-state through affirmative legislation and the redistribution of resources, Piepzna-Samarasinha critiques these strategies as exclusionary and inadequate especially for sick and disabled QTBIPOC and traces instead the everyday care webs that participants in Disability Justice knit together to meet these unmet needs. Most do not think about disability in performance spaces. We won't be grateful to be included; we will want to set the agenda. An empowering collection of essays on the author's experiences in the disability justice movement. This book reinvigorated me to fight for a social safety net as well as prioritizing disability justice in my own communities. So this is our school read this year and Piepzna-Samarasinha is coming to talk at the end of this month. Piepzna-Samarasinha encourages the use of care webs, which are groups of individuals (who may be disabled, able-bodied/not disabled, or a mixture) who work together to provide care and access to resources for each other. And of course none of them think theyre ableist., Disabled Cherokee scholar Qwo-Li Driskill has remarked that in precontact Cherokee, there are many words for people with different kinds of bodies, illnesses, and what would be seen as impairments; none of those words are negative or view those sick or disabled people as defective or not as good as normatively bodied people.9 With the arrival of white settler colonialism, things changed, and not in a good way. People with a variety of disabilitiesvisible and invisibleare collectively dreaming of people cuddling cats in bed surrounded by flowers, while the people cuddling cats in bed are collectively dreaming of being in community together. prob would have appreciated more when this came out 2 years ago. I was blown away by this. For those who are chronically ill and need to go on tour, Piepzna-Samarasinha provides a list of tips. Let's dream some disability justice together . Leah Lakshmi Piepzna-Samarasinha, organizer and author, including Care Work: Dreaming Disability Justice**:** The pandemic "cripped the world" and because of this there was a mass consciousness . One of the most mind-expanding and heart-opening books I have ever read. SUSTAINABILITY We pace ourselves, individually and collectively, to be sustained long term. Our embodied experiences guide us toward ongoing justice and liberation. Care Work: Dreaming Disability Justice. Must reads (really all of the book, it holds together so beautifully and even scaffolds as a collection): "Care Webs: Experiments in Creating Collective Access; "Protect Your Heart: Femme Leadership and Hyper-Accountability;" "Not Over It, Not Fixed, And Living A Life Worth Living: Towards an Anti-Ableist Vision of Survivorhood.". So we do all of that 'self-care' to return to organizational cultures where we reproduce the systems we are trying to break., Peoples fear of accessing care didnt come out of nowhere. Care Work, an impeccably written and edited collection, does just that. It is very similar to Leah LakshmiPiepzna-Samarasinhas subtitle for Care Work: Dreaming Disability Justice. Leah and I talked, and they expressed that this name is lovely for our organization. About our name: Disability Justice Dreaming was imagined through Disability Justice cross-pollination by Rebel Sidney Fayola Black Burnett. A Disability Justice framework understands that all bodies are unique and essential, that all bodies have strengths and needs that must be met., Inclusion without power or leadership is tokenism., The thing I always wanted to say is that surviving abuse sucks. Information. Care Work: Dreaming Disability Justice is a collection of visionary essays on vibrant organizing for Disability Justice that is gathering momentum across the unceded and occupied Indigenous territories in North America. Disability Justice puts the needs of communities and individuals who are often forgotten about, like QTBIPOC, in the forefront to focus on their needs and values them. This essay collection focuses on disability justice, which is a movement in disability rights that centers the lives and experiences of QTBIPOC (queer, trans, Black, Indigenous, and People of Color) individuals. Leah Lakshmi Piepzna-Samarasinha is a Toronto and Oakland-based poet, writer, educator and social activist. By closing this message, you are consenting to our use of cookies. She is also a long-time member of the disability justice movement, which advocates for the rights of the disabled. Care Work: Dreaming Disability Justice is a collection profoundly necessary at this moment . the essays share a fundamental hypothesis: to achieve social justice, ableism must be destroyed. So many of the movements Ive been a part of in my lifetimethe movements against wars in Afghanistan/Iraq and against Islamophobic racist violence here on Turtle Island, movements for sex work justice and for missing and murdered Indigenous women, movements led by and for trans women of color, movements for Black lives, movements by and for disabled folks and for survivors of abuseinvolve a lot of grieving and remembering people we love who have been murdered, died, or been hurt/abused/gone through really horrible shit., Although containing and denying grief is a time-honored activist practice that works for some people, I would argue that feelings of grief and trauma are not a distraction from the struggle. WorldCat is the worlds largest library catalog, helping you find library materials online. The bliss of your very first door that shuts all the way. My full review is at. With all of our crazy, adaptive-deviced, loving kinship and commitment to each other, we will leave no one behind as we roll, limp, stim, sign, and move in a million ways towards co-creating the decolonial living future. I loved that a Canadian put this collection together but am angry at the same time how difficult it was for her to find a publisher willing to work with her. Care Work: Dreaming Disability Justice. Presently, disability justice and emotional/care work are buzzwords on many people's lips, and the disabled and sick are discovering new ways to build power within themselves and each other; at the same time, those powers remain at risk in this fragile political climate in which we find ourselves. # x27 ; s dream some disability justice must include the feelings thoughts., disabled artists are discouraged from sharing their Work with the public, which advocates the. 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